The National Virtual Rare Diseases Institute was born in 2021. It includes 23 IRCCS and aims at fighting the neurological rare diseases by sharing in a functional way the existing skills as well as the diagnostic-therapeutic and research protocols and methodologies. In the first year of life, the activities are being devoted to: the harmonization and sharing of clinical, instrumental and laboratory diagnostic protocols and procedures; the creation of a common database to collect and share the information in a protected manner; the conduction of a survey of the technological resources, disease models, and innovative therapies available in the Virtual Institute to favour the design of common projects. The 23 IRCCS are investigating and treating a large number of rare diseases affecting children and adults; the harmonization process starts from some of them chosen as models: intellectual disability of childhood, ataxias and spastic paraplegias, hereditary neuropathies, mitochondrial diseases, and leukodystrophies.
Davide Pareyson Istituto Neurologico Besta
Enza Maria Valente Istituto Neurologico Mondino
To be defined Istituto Neurologico Besta
Maria Teresa Bassi La Nostra Famiglia _ Marina Grandis Policlinico San Martino _ Rocco Liguori Istituto Scienze Neurologiche Bologna _ Corrado Romano Oasi Maria SS Troina _ Federico Vigevano Ospedale Bambino Gesù
Davide Pareyson Istituto Neurologico Besta _ Enza Maria Valente Istituto Neurologico Mondino _ Giacomo Comi Ospedale Maggiore Policlinico _ Maria A. Rocca Ospedale San Raffaele _ Gianluigi Forloni Istituto Mario Negri _ Mario Clerici Don Gnocchi _ Vincenzo Silani Istituto Auxologico Italiano _ Eduardo Nobile-Orazio Humanitas _ Maria Teresa Bassi La Nostra Famiglia _ Paolo Volanti Istituti Clinici Scientifici Maugeri _ Rocco Liguori Istituto Scienze Neurologiche Bologna _ Rita Barresi Ospedale San Camillo _ Pasquale Striano Istituto Gaslini _ Marina Grandis Policlinico San Martino _ Filippo Santorelli Fondazione Stella Maris _ Federico Vigevano Ospedale Bambino Gesù _ Serenella Servidei Policlinico Gemelli _ Emiliano Giardina Fondazione Santa Lucia _ Alba Di Pardo Istituto Neuromed _ Massimo Carella Casa Sollievo della Sofferenza _ Corrado Romano Oasi Maria SS Troina _ Andrea AntinorI Istituto Spallanzani _ Andrea Pace Istituto Nazionale Tumori Regina Elena
Caterina Mariotti Istituto Neurologico Besta _ Renato Borgatti Istituto Neurologico Mondino _ Fabio Triulzi Ospedale Maggiore Policlinico _ Vincenzo Donadio Istituto Scienze Neurologiche Bologna _ Paola Mandich Policlinico San Martino _ Filippo Santorelli Fondazione Stella Maris _ Alessandra Bolino Ospedale San Raffaele _ Riccardo Bellazzi Istituti Clinici Scientifici Maugeri _Marta Ciofi Degli Atti Ospedale Bambino Gesù
Dedicated Human Resources
345Dedicated beds
303Dedicated medical clinics per week
202Hospital admissions per Year
>10.000Outpatients per year
~28.000Active clinical Trials
380Impact Factor (Normalised)
~14.250